Madison Partners for Inclusive Education

Strong Families. Inclusive Schools. Better Education For All.

MPIE is a grassroots organization dedicated to creating partnerships with the primary goals of improving communication, sharing knowledge and resources, and providing leadership to ensure quality educational outcomes for all students.

Back to School Time!

Events

Members

  • Kelly Chasco
  • Megan Peterson
  • Christine Jarrett
  • Amy Verheyden
  • Barbara Katz
  • Deb Wisniewski
  • Becky Reichardt
  • Kristin Gowan
  • Molly Tupta
  • Monica KamalRossa
  • Jill Skeans
  • Anne Morgan Giroux

High Performing Schools By Ann Yehle

Getting the conversation started.....

Creating and sustaining a high quality inclusive school district takes the ongoing collaborative efforts of a variety of stakeholder groups.  This includes staff in our schools, our students, central office staff, professionals from our institutes of high education, and our parents and members of the community.  If we are committed to creating a high quality inclusive experience for each and every one of our students, we must continually examine our practices.  We must be willing to look at what we do well and determine a way to strengthen these areas as well as look at our areas of challenges and determine how to improve.  In order to do so, we need to engage the voices of many.  Hence, I look forward to a conversation with interested individuals relative to what makes a high performing inclusive school district?  What does this look like?  What types of structures are in place?  How are the teachers, principals, etc. supported so they can do this work?  How do we engage the voices of our students?  What can central office staff do to support this work?  I thank you in advance for engaging in this conversation.  Ann
 

Contact Us

Welcome to the Madison Partners for Inclusive Education Ning! We are an informal network of families and providers who are interested in sharing resources, information and ideas.

Check out the calendar of events and read today's forum. Add your comments! You can contact us at:
madisonpartnersforinclusion@yahoo.com
To receive email alerts about special education issues and events, send a blank email to: Madison_Partners-subscribe@yahoogroups.com

We do not endorse or promote products or programs and do not allow promotion or sales on this site.

Latest Activity

November 9
November 6
Lisa Byington and Krysia Braun joined Madison Partners for Inclusive Education
November 4
This is a training offered through the Waisman Center, UW Pediatric Pulmonary Center, Group Health Cooperative adn Family Voices of WI
October 22

Notes

Uses for Stimulus Funding

Created by Lisa Pugh Aug 13, 2009 at 9:49am. Last updated by Lisa Pugh Aug 13.

College for Youth With Disabilities? Read This!

Created by Lisa Pugh Aug 10, 2009 at 12:31pm. Last updated by Lisa Pugh Aug 10.

Middle School Parent Survey

Created by Beth Swedeen Apr 18, 2009 at 3:46pm. Last updated by Beth Swedeen Apr 18.

Photos

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Forum

Beth Swedeen

MMSD Transition Guide and Checklists

Hi all, Here's a great resource on transition, including explanations of transition options and checklists for certain grades that was developed by MMSD. Check it out and share it with your own sc...

Started by Beth Swedeen in Resources Feb 18.

Lisa Pugh

High Performing Schools - a New Blog from Ann Yehle 3 Replies

High Performing School Districts - Check out this new Blog from MMSD's Director of Educational Services, Ann Yehle. She encourages all Madison Partners to join in the conversation and create truly ...

Started by Lisa Pugh in Resources. Last reply by Ann Yehle Feb 11.

Beth Swedeen

MMSD What's Poppin' newsletter for Jan. 17

Hi all, this attached version of What's Poppin' from Ann Yehle and her team includes some interesting events coming up in the next couple weeks and list at the end of key administrative staff rela...

Started by Beth Swedeen in Special Education Jan 18.

About Partners: Our Vision

Our Vision:
* A paradigm shift in peoples’ attitudes about accepting diversity. Children who have learned to work together, collaborate, communicate effectively, and understand differences will be better prepared for work and for life.

* Working with MMSD leadership toward special education policies and other district wide policies that work best in ensuring high educational outcomes for ALL students.

* Ensuring that our schools take advantage of what the community has to offer in a consistent manner across schools.

* Working with Board of Education members and district staff to think of our group as a community resource.

* Assuring that each MMSD principal has a more thorough understanding of special education issues and has a commitment to inclusive education.

* Supporting training so that teachers can effectively use differentiation, and continued professional development for related service staff and Special Education Assistants on inclusive service delivery.

Madison Partners Member Lisa Pugh is Completing a One-Year Disability Fellowship in Washington, DC. Follow-Along as She Experiences Public Policy Development from the Inside!

Parsing the Madison POTUS visit

I have been scouring the news clips today looking for a headline or a mention of an important nugget that came up in President Obama’s speech at Madison’s Wright Middle School yesterday. Unfortunately, for now, I am coming up empty-handed. As expected, the President’s remarks included shades of politics, mantras and justification. But he also spoke very specifically about subgroups of kids whose future is highly dependent upon whatever direction the Administration takes in terms of education reform.

While you certainly could argue that the future of all kids is riding on a high quality education, expectations and tangible long-term outcomes, it is hard to justify that certain kids don’t have more to lose. In my mind, those kids are high-poverty students who many times don’t come to school with the same advantages and often do not go home to the same rich environments. It also includes kids who are English Language Learners and students with disabilities who require extra supports in order to succeed.

The data is precise: dropout and non-diploma rates among these high risk groups, including students with disabilities, are unacceptable. And when students drop-out or don’t graduate, the long-term outcomes and costs are not difficult to imagine. It affects us all.

However, there was a glimmer of hope in what I heard the president say very clearly yesterday - that Wright is doing Right by these kids.

In particular, when speaking about the types of education reforms he and the Department of Education will be looking for in states, he held Wright up as a model and congratulated staff for its high expectations for all students, “[A state’s reform commitment] means boosting the number -- the numbers of quality teachers who can help our special education and English language learners meet high standards -- and you've done that here at Wright, so congratulations on that. (Applause.)”


The applause was music to my ears. But what I hope others heard and saw at Wright is that the resources and supports that help these subgroups of students help ALL students. Quality best practice strategies like co-teaching, differentiated curriculum, coordinated planning time and universal design for learning boost achievement all the way around. Instead of investing more resources in bodies with specific titles, Wright’s success has been defined in strategies and commitment.

I also hope the President’s short sentence lauding high expectations for all students, including students with disabilities, is a wake-up call for the disability community. In order to play in the highly politicized game of education reform, we need to congratulate policy-makers when they get it right and be at the table in GENERAL education discussions to ensure that students with disabilities are not separate or dismissed amid dialogue on high expectations.


If I could have the President’s ear (still figuring out how to do that!), I would tell him we need to boost the amount of high quality instruction for all kids, period – it’s not about “special” this or “special” that. It’s not about more or better special education teachers; it is about equipping ALL teachers to know how to work effectively with ALL kids – despite the individual needs they bring to the classroom.


Lisa Pugh is the 2009 Kennedy Foundation Public Policy Fellow. She will work on disability public policy for the House Committee on Education and Labor during the 111th Congress and is being sponsored by The Arc Wisconsin. She will live for one year with her family in Washington and return to her home in Madison, Wisconsin to share what she’s learned in June 2010.



Spinning the Storyline

Have you noticed that Washington has a messaging problem? As my texting pre-teen would say, “IKR!” (For us oldtimers, that translates to: “I Know, Right!”) But while political story spinning may be old news, it seems to have reached new heights. And before you jump to the conclusion that I’m solely addressing the contentious healthcare debate, I instead present Happy the Hippo.

Happy is a 5,500 pound Nile hippopotamus who has been a resident of Washington for 28 years. True to his moniker, Happy has by all accounts lived a fulfilling life. But recently our National Zoo decided Happy should move to Milwaukee. Sometime this September he will make a new home in Wisconsin as our zoo in D.C. invests millions to expand an elephant exhibit.

When I first read this Happy story I pondered that while a new elephant exhibit would be nice, my family would miss Happy. Apparently others felt much more strongly. Not more than 24 hours had passed when editorials, letter writing campaigns and petitions sprung from nowhere. D.C. zoo lovers were irate! How could the zoo betray one if its own? Didn’t D.C. have some of the best hippo-care in the world? Why would Happy want to change when things were fine as is? A change would only make things worse for everyone – there were simply too many unknowns.

My public relations ears were perked. How would the zoo handle this messaging dilemma? I knew only a skillful p.r. person would be able to keep P.E.T.A. and hippo lovers at bay. This was going to get interesting.

Ultimately, the talking points that emerged in this pending disaster were nothing less than brilliant. After the initial Happy story bombed and all hell broke loose, the zoo’s response was not a hard-hearted message that Happy would move despite concerns or even a retreat to say that things would now stay the same. The zoo instead spun the story to say that the move was in Happy’s BEST INTEREST. And then they alleviated fears by explaining, with substantiated facts, exactly why.

You see, Happy’s tank at the D.C. zoo, while it meets his basic needs, is really too small. (Come to think of it, the only times I saw Happy, he was crammed in a concrete pen indoors surrounded by smelly elephant dung.) And even though he seemed, well, happy, Happy had never met a girl hippo in his life. He was a bachelor who had spent the majority of his years living with his mother until she died.

Upon his move to Milwaukee Happy will find not only a much larger roaming area and vast swimming space, but TWO new female companions. According to the Milwaukee Journal Sentinel, a specialized hippo-care expansion will even include a personal shower and yard:

“Zoo planners have finished a new indoor facility for Happy and current zoo hippos Patty and Puddles, both females. The expanded $1.5 million quarters will include a heated floor and a chute where zoo veterinarians can perform minor medical tests on the hippos without risking anesthesia.”

Yes, even Happy will now have access to improved socialized medicine.

The ultimate intent, according to the National Zoo, is for Happy to find love and become a father.

In their website message to zoo-goers officials say:

“Sometimes doing the right thing is hard. Animals move between zoos all the time as exhibit requirements change, for breeding purposes, or for their own well-being. Even Happy's keepers say that, although they will miss Happy, this is the best thing for him.”

I haven’t heard much on this story since. The new talking points seemed to have worked their magic. Even P.E.T.A. has been satisfied that while change is difficult and scary, sometimes, with enough information and belief in future benefits, it is worth the risk.

I believe there are lessons to be learned from Happy’s story. I recently attended a press event on health insurance reform in which families with children with disabilities claimed a new public health system would result in rationed care, that a government panel - not a doctor - would control access to treatments and children would die. The only problem is it takes only a little research to uncover that those message points are based on fear, not fact. These personal stories represent concerns worthy of discussion, but according to leading national disability organizations, are not a valid representation of any proposed legislation anywhere.

While we all struggle for true fair and balanced information amid claims of a liberal media bias and Fox News distortion, none of us can afford to take anecdotal message points at face value. We need to do our homework. This Sunday Republican Minnesota Governor Tim Pawlenty pointed to the non-partisan http://www.factcheck.org/ as an institution which verifies “legitimate concern” and “merit” in issues. I agree.

Regardless of how you feel about the health insurance reform debate, people on all sides of the equation, including consumers, medical professionals, Republicans and Democrats, are in agreement that something needs to change. Whatever route to improvement we take, change will be hard and we may not see positive results for some time.

I think Happy would advise that research on quality care and honest discussion is necessary. Fear is a powerful force. In Happy’s case, it could have sentenced him to celibacy. For parents of children with special needs, it could mean that the silent rationing that already exists will continue without question.

Lisa Pugh is the 2009 Kennedy Foundation Public Policy Fellow. She will work on disability public policy for the House Committee on Education and Labor during the 111th Congress and is being sponsored by The Arc Wisconsin. She will live for one year with her family in Washington and return to her home in Madison, Wisconsin to share what she’s learned in January 2010.

Mourning a Legacy

(Before I begin, it bears mentioning that I recognize my deficits when it comes to blogging. People expect blogs to be informative, interesting and routine. While I hope I have achieved some level of entertainment for readers, since my family has joined me in D.C. (and frankly, my fellow workload has increased), I have been admittedly lax in my communication. I apologize, and in true political fashion, pledge to do better.)


One of the things that created the greatest anxiety for me while considering applying for the Kennedy Foundation Fellowship was the prospect of being interviewed by Eunice Kennedy Shriver. I had heard various horror stories of her high jacked conversations and left-field questions that threw candidates in a tizzy or resulted in tears. In one notorious meeting she apparently thanked an interviewee and sent her packing prior to asking the first question. I did not know if I could withstand such scrutiny.

So leading up to my fellowship selection approximately one year ago, I prepared for a potential Eunice interaction. My Madison friends staged a mock interview, past fellows shared stories and strategies, and I read up on Mrs. Shriver’s work.

Alas, when interview day came, Mrs. Shriver was not in attendance. I breathed a sigh of relief. And now I am mourning a missed opportunity.

My exposure to the Kennedy family work in disability issues before arriving in Washington was limited to my knowledge of Special Olympics – what I thought of as merely a charity-based, segregated sporting event for people with intellectual disabilities run by Mrs. Shriver. What I have come to learn in the last six months is the deep and often behind the scenes commitment to disability issues by not only Mrs. Shriver, but also her Senator brother, Ted.

Most vaguely know the Kennedy’s connection to disability as derived from their eldest sister Rosemary. Rosemary, a beautiful and capable young woman who kept a diary and was often pictured in formal family photos, could reportedly not keep up intellectually with her brothers and sisters and at times had problem behaviors. After a disastrous experimental operation in which a doctor assured the Kennedy’s he could cure her with a lobotomy, Rose was instead reduced to an infantile mentality. She lived out the remainder of her years in a home for people with disabilities in Wisconsin.



But Rose’s younger sister and brother, Eunice and Ted, remembered the promise of their sister by dedicating their lives to promoting the dignity of people with disabilities.

Stories of Mrs. Shriver in my mind now extend to a woman who felt passionate about affordable housing and community inclusion for individuals with disabilities. She was someone who the mere mention of her name could get a Senator on the phone in an instant. Even into her eighties, she could command a meeting on the Hill, and even as recently as a few months ago, was seen walking through these halls to court Congressional Members on issues.

Together with her brother, the Kennedy’s were a formidable pair. During the Senator’s career he authored or sponsored fair housing legislation, the Americans with Disabilities Act, ground-breaking changes to the education of children with disabilities through IDEA and countless other Acts which have had lasting implications for people like my daughter. His influence made things happen. Senators followed his example.


Eunice and Ted were a rare combination of passion, power and personal experience. Now that both of these figures are gone, I wonder who is capable of filling their shoes. We advocates have lost a tremendous unified voice for change. And I have missed my opportunity to brush with greatness.

Lisa Pugh is the 2009 Kennedy Foundation Public Policy Fellow. She will work on disability public policy for the House Committee on Education and Labor during the 111th Congress and is being sponsored by The Arc Wisconsin. She will live for one year with her family in Washington and return to her home in Madison, Wisconsin to share what she’s learned in January 2010.

Encountering George

I recently reached the pinnacle of my fellowship experience – I exchanged glances with George Stephanopoulos. I am not ashamed to say I have been pseudo-stalking George for years. Even my husband is well aware that the “Greek geek” (as my Face Book friends would say) has been a longtime secret crush.

While I was a television reporter in Green Bay, Wisconsin, George held what I considered my dream job – President Bill Clinton’s communications director. (My brief one-on-one encounter and lingering handshake with then candidate Clinton on the 1992 campaign trail is yet another story, but I remained far more impressed with his young spin doctor.)

These days I religiously watch George on his weekly Sunday morning show. And last week, in his orange polo shirt, khakis and leather loafers, George and I stood side by side on a street corner in Georgetown as he hailed a cab and I waited to cross. Summary: yes, he is short; no, I did not say hello; maybe I will regret that.

But I am a firm believer that when you finally have the opportunity to meet someone you admire, you must be prepared for the reality that he or she may not be all you imagined. In this case, I risked discovering that George is in actuality an arrogant, narcissistic a*#. So I played it safe and simply smiled.

The whole reason I ran into GS in the first place is that, as part of my Kennedy Fellowship, I took a course in bioethics at the historic Georgetown campus. For an entire week I sat in lecture and discussion with international experts on everything from ethics in healthcare, stem cell research and end of life issues. Although I did receive an “A” from Mr. Tjader in high school biology, science was never my forte. A week of intense reflection with groups of philosophers, theologians, researchers and surgeons awakened a new interest and, to be honest, some specific concerns.

As we listened to professors debate the relevance of key ethical decisions throughout time, as a disability advocate, I was struck by what was not said. Lectures pointing out the obvious and egregious ethical mistakes of Nazi doctors who looked the other way as they performed autopsies in the name of medical discovery or research conducted on hundreds of ill-informed, poor black men elicited extreme reaction.

But the ethical issues surrounding the advancements in pre-natal testing are where I noticed a distinct difference. While bio-technological discoveries have allowed otherwise infertile parents to conceive, the selection of embryos free of the genetic code for Alzheimer’s, and the treatment of disorders in the womb, they have also begun the annihilation of people with disabilities.

Although I suspected this was true, the facts are that the abortion rate of fetuses diagnosed in utero with trisomy 21 or Down Syndrome is upwards of 85%. Even though it is widely considered to be unethical, diagnosing doctors often suggest (this has happened to women I know personally) that it would be in the parent and child’s best interest to abort.

The broad consequences of these exam room conversations may not be entirely apparent. Do not all prospective parents simply want a healthy baby? But through the simple in-utero test for Down Syndrome, it is estimated that hundreds of perfectly healthy babies are lost. With advancements in technology, we are surely near a time in which many disorders will be detected. As professor and bio-ethicist Dr. Gregory W. Rutecki says, how do we know that baby with Alzheimer’s would not grow up to be the next Bach or Mozart?

According to Dr. Gregory W. Rutecki:

"If a diagnosis is sought by either chorionic villus sampling or amniocentesis, in the United Kingdom for example, a miscarriage incited by the procedure occurs in 1/100 women and the loss of another 300 perfectly healthy babies in addition to those with Down syndrome occurs annually.2 It seems as if culture has determined that there is no greater tragedy to befall pregnancy than a child with Down syndrome. So “bad” is the scourge of trisomy 21 that society deems it worth losing an additional 300 children without any apparent abnormality in their relentless effort to eradicate those with Down syndrome."


Beyond this grave concern is the notion that someone with a disability cannot lead a fulfilling and contributing life. I highly suspect doctors making these recommendations to expectant mothers see only fragile newborns with Down Syndrome as opposed to the interesting and successful adults I know who hold jobs, have girlfriends, and go to church. If you ask these individuals, life is good. If you ask their families, they would have it no other way.

For me, the question of whether the young life diagnosed with trisomy 21 is valuable pertains directly to me as an advocate. As I work in Congress on issues to promote better quality services and supports for children and adults with disabilities, to ensure the civil rights of all individuals, my job becomes more difficult. It is harder to form the argument that all people belong when on the front end, even our doctors do not believe it.

Needless to say, my encounters in Georgetown have left me with much to think about. I only hope I do not remain disappointed in the views of others.

Lisa Pugh is the 2009 Kennedy Foundation Public Policy Fellow. She will work on disability public policy for the House Committee on Education and Labor during the 111th Congress and is being sponsored by The Arc Wisconsin. She will live for one year with her family in Washington and return to her home in Madison, Wisconsin to share what she’s learned in January 2010.

Seeing the Sights


It is easy to get lost in Washington, DC. On the road, traffic is congested, drivers are impatient and signage, well…sucks. Even while on foot, I am embarrassed to admit, I still get lost in my office building. This week I traveled to the Senate side of the Capitol Complex on several occasions to listen to public comment – that meant riding the elevator to the sub-basement, hitching a ride on the underground subway and winding my way through the Capitol building to find more tunnels. Despite maps, it’s not as easy as one might think.

However, disorientation aside, I attempt to soak in the sights along the way. In the tunnels, flags and seals from each of the 50 states (Wisconsin’s is best, in my opinion) line the walls, and dozens of imposing stone statues inhabit the Capitol. Actually, some of those frozen replicas are a bit creepy, but that’s another blog post…

Despite inadequate official signage, landmarks abound throughout Washington – so many that even the directionally challenged could mark a path.

Recently my family and I walked beneath the reverent United States Air Force Memorial. That’s a landmark you can view for miles. We’ve also seen the Washington Monument, the White House and much of the Smithsonian up close. My personal favorite is the Lincoln Memorial – just a walk down the National Mall from my office.

Unfortunately, not all the DC sights are spectacular in nature.

My daily commute into work involves a 15-minute bus ride followed by a 30-minute train ride which lets out at 3rd and D street right near my office, and my guilty pleasure – Starbucks.

One particularly frigid day this spring, a man stood outside holding the door. He wore a tattered coat, had a trash bag of belongings at his feet and held out a plastic cup. I shivered as I hustled inside, murmuring a thank you and prepared to pay for my two dollar coffee. I couldn’t help but feel guilty. I gave this man a dollar as I walked out. And he was back again the next day. And the following.

Indeed, in downtown DC, a homeless person is literally a sight on every block. In some parks you will see dozens. Living here for any period of time, I sense it is difficult to not become jaded. Difficult to not simply look away. It is also hard to know how to help. After all, does a dollar accomplish anything?

The House Committee on Education and Labor where I work is perhaps one of the most influential entrees to public policy on social issues in our Capital – in our country. Often, when there is a movement to formulate policy to improve conditions for individuals in our society who live outside anyone’s expectation of dignity, this Committee and its Members consider a piece of it.

However, to be honest, the reports, calls and e-mails I receive from advocates in the disability community and elsewhere convince me there are simply too many tragic problems in this world, in this country, for any one committee or Congressman to fix.

Take for instance a recent New York Times article. It reports that although the state of Nebraska made headlines last year as parents sought safe harbor for their mentally ill children at hospitals, the state’s resources continue to be inadequate. Desperate or ill-equipped parents have absolutely nowhere to turn. I cannot imagine saying goodbye to my child at the state’s doorstep – relinquishing my connection as a mother simply because I had no other options. And yet, no one has found an answer.

What I am also convicted of is individuals -whether homeless, born with a disability, single mother to a mentally ill child - do not deserve to live in sub-human conditions. There may not be an easy fix, but at the very least, we all must know and care that this happens in our country. We cannot afford to look away.

As I take my kids on a ride on the Metro to see the sights, I do not want the homeless person lying in the corner to be the image they remember about our Capital. And yet, it is a sight I do not want them to forget.

Lisa Pugh is the 2009 Kennedy Foundation Public Policy Fellow. She will work on disability public policy for the House Committee on Education and Labor during the 111th Congress and is being sponsored by The Arc Wisconsin. She will live for one year with her family in Washington and return to her home in Madison, Wisconsin to share what she’s learned in January 2010.
 
 

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Supporters of Madison Partners for Inclusive Education

Family Support and Resource Center (FSRC)
"Family Support & Resource Center supports the efforts of Madison Partners to ensure high quality, inclusive education for all students in the Madison community."
-- Terri Johnson, Former Executive Director, Family Support and Resource Center


Madison Area Down Syndrome Society
"The Madison Area Down Syndrome Society supports Madison Partners in seeking creative, individualized, and inclusive education for ALL students."
-- Andrea Wipperfurth, Executive Director, Madison Area Down Syndrome Society


Autism Society of Greater Madison
"The Autism Society of Greater Madison supports inclusive education that is differentiated for each child's individual needs for success in the classroom."
--Molly Immendorf, Past President, Autism Society of Greater Madison
 

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